Benny Penner
Benny Penner was a vivacious and beautiful boy who lost his life to Battens Disease in 2010 at the age of five. Battens Disease is an extremely rare and fatal autosomal recessive neurodegenerative disorder that occurs in children. Because it is so uncommon, it is impossible to treat.
Benny put up a courageous fight despite suffering from seizures and the progressive mental and physical impairments brought on by the illness. He was known for his bear-strength hugs and sweet smile even when he could no longer move or speak. Benny loved sunflowers and playing with his twin brother Tomas.
His family created The Spirit of Benny® to honor his memory by supporting other families experiencing the devastation of childhood illness.
Our Mission
Our mission is to raise funds for non-profit agencies helping seriously ill children and their families. Raising awareness of the needs of children with life-threatening illnesses within their own communities and the non-profit agencies that support them. We help to make fundraising family friendly.
Our Fundraising
On March 17, 2012 we had our first 5K Fun Run and Walk and raised $5,000. In 2013 the run was expanded to include a 10K and since then over $100,000 has been raised. All monies are earmarked for El Dorado County residents only. We are grateful for all our generous sponsors, donors, and participants who have helped to support us.
Our Recipients
Your participation or support will help better the lives of seriously ill children of El Dorado County from providing medical expense aid to special experiences. Helping to make a wish come true helps children feel stronger, more energetic, more willing and able to battle their critical illnesses.